Disability Justice: A Reader's Guide: Where to Start

16 essays by 17 disabled writers, activists and artists. This is crip wisdom for the people.
Edited by Alice Wong, founder of the Disability Visibility Project, Resistance and Hope will transform the way you think about activism, leadership and social justice.

How do we fight back in an era of uncertainty, institutionalized cruelty, and widespread tolerance for ableism and hate? Written in 2017, the authors explore resistance, hope, self care, disability rights and justice, and the politics of Trump in a series of provocative, challenging essays. They bring the power of intersectional cross-platform organizing and the strength found through mutual accountability to words that will help you define the resistance you want to fight for, not just the harm you want to react against.

Dare to dream bigger and create space for all with this visionary essay anthology from multiply marginalized disabled people redefining an inclusive climate of resistance. The time is NOW!

"Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again." --Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent--but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson's account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

First published over forty years ago, The Cancer Journals is a startling, powerful account of Audre Lorde’s experience with breast cancer and mastectomy. Long before narratives explored the silences around illness and women’s pain, Lorde questioned the rules of conformity for women’s body images and supported the need to confront physical loss not hidden by prosthesis. Living as a “black, lesbian, mother, warrior, poet,” Lorde heals and re-envisions herself on her own terms and offers her voice, grief, resistance, and courage to those dealing with their own diagnosis. Poetic and profoundly feminist, Lorde’s testament gives visibility and strength to women with cancer to define themselves, and to transform their silence into language and action.

First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.

In The Future Is Disabled, Leah Lakshmi Piepzna-Samarasinha asks some provocative questions: What if the majority of people will be disabled in the near future - and what if that's not a bad thing? And what if disability justice and disabled wisdom become crucial if we're going to create a future where surviving fascism, climate change, and pandemics and creating liberation are possible? Building on the work of her game-changing book Care Work: Dreaming Disability Justice, Piepzna-Samarasinha writes about disability justice at the end of the world, documenting the many ways disabled people kept and are keeping each other - and the rest of the world - alive during Trump, fascism and the COVID-19 pandemic. Other subjects include crip interdependence, care and mutual aid in real life, disabled community building, and disabled art practice as survival and joy. Written over the course of two years of disabled isolation during the pandemic, this is a book of love letters to other disabled

Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Leah writes passionately and personally about creating spaces by and for sick and disabled queer people of colour, and creative "collective access" -- access not as a chore but as a collective responsibility and pleasure -- in our communities and political movements. Bringing their survival skills and knowledge from years of cultural and activist work, Piepzna-Samarasinha explores everything from the economics of queer femme emotional labour, to suicide in queer and trans communities, to the nitty-gritty of touring as a sick and disabled queer artist of colour. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of colour are doing to find each other and to build power and community, and a toolkit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms.

A groundbreaking anthology that probes the disposition towards the visually different Giants. Midgets. Tribal non-Westerners. The very fat. The very thin. Hermaphrodites. Conjoined twins. The disabled. The very hirsute. In American history, all have shared the platform equally, as freaks, human oddities, their only commonality their assigned role of anomalous other to the gathered throngs. For the price of a ticket, freak shows offered spectators an icon of bodily otherness whose difference from them secured their own membership in a common American identity--by comparison ordinary, tractable, normal. Rosemarie Thomson's groundbreaking anthology probes America's disposition toward the visually different. Thomson traces the freak show from antiquity to the modern period and explores the constitutive, political, and textual properties of such exhibits. Freakery is a fresh, insightful exploration of a heretofore neglected aspect of American mass culture.

In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women's Health Project alongside interviews with contemporary Black disabled cultural workers, Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.

The Second Edition of "Skin, Tooth, and Bone: The Basis of Movement is Our People" is a Disability Justice Primer based in the work of Patty Berne and Sins Invalid. The Disability Justice Primer offers concrete suggestions for moving beyond the socialization of ableism, such as mobilizing against police violence, how to commit to mixed ability organizing, and access suggestions for events. Skin, Tooth, and Bone offers analysis, history and context for the growing Disability Justice Movement. The Second Edition includes the addition of a section on Audism and Deafhood written and edited by members of the D/deaf community, and a Call to Action from Survivors of Environmental Injury, as well as disability justice timelines, an extensive glossary, and a resource list for learning more. Visit our store at tinyurl.com/SinsShopping to purchase a downloadable PDF version, text-only reader version, or hard copy that you can hold in your hands!